Community support can be an important part of understanding and managing health experiences. You are not alone. Patient advocacy organizations are organizations that provide education and support for people with medical conditions and their loved ones. Below, please find more information on some organizations that might be helpful to you in your own lived experience. These resources are provided as a courtesy to patients. The links will take you to websites that are not owned or operated by Pfizer, Myovant Sciences, or their subsidiaries. Pfizer and Myovant Sciences do not control, endorse, or guarantee the content of third-party websites.
APIAHF influences policy, mobilizes communities, and strengthens programs and organizations to improve the health of Asian Americans, Native Hawaiians, and Pacific Islanders.
Our mission is to improve health literacy, thereby improving health outcomes.
To lead the effort to solve the most pressing health issues that affect Black women and girls in the U.S. Through investments in evidence-based strategies, we deliver bold new programs and advocate health-promoting policies.
The Center for Black Health & Equity facilitates programs and services that promote health equity for people of African descent. We envision a world where all people of African descent are able to obtain their optimal health outcomes.
Mental Health America advances the mental health and well-being of all people living in the U.S. through public education, research, advocacy and public policy, and direct service.
The mission of Día de la Mujer Latina is to promote healthy behaviors within the underserved Latino community by providing a culturally and linguistically proficient education, facilitating early detection screening, culturally preventative care interventions, promoting wellness with resource information, Promotores/Community Health Workers training, and patient navigation for follow-up services.
The Endometriosis Association, an international nonprofit organization with members worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and because families are often impacted by the debilitating effects the disease has on their loved ones, we extend our support services to them as well. Second, we implement education programs and produce informative materials for those affected by the disease, for the public and for medical professionals. Third, we conduct and promote research in collaboration with leading medical researchers worldwide in order to find better treatments and ultimately a cure for this lifealtering, potentially disabling disease.
Endo Black, Inc. is a black-women led organization advocating for African American women and women of color living with endometriosis.
The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.
The Fibroid Foundation is the premier fibroids nonprofit, supporting and amplifying the voice of those with uterine fibroids. As a strong, supportive, and empowered community, we are elevating menstrual health and equity globally through our education, advocacy, research, and legislation efforts.
The Grange strengthens individuals, families, and communities through grassroots action, service, education, advocacy, and agriculture awareness.
HealthyWomen is on a mission to educate women ages 35 to 64 to make informed health decisions and to advocate for themselves in a healthcare setting.
The mission of the National Alliance on Mental Illness (NAMI) is to provide advocacy, education, support, and public awareness so that all individuals and families affected by mental illness can build better lives. NAMI began in 1979 with a small group of families gathered around a kitchen table who wanted support for those in their lives with mental illness. Today, NAMI has expanded to an alliance of over 600 local affiliates and state organizations that work in local communities to raise awareness and provide support and education to those in need.
To decrease uterine care and menstrual health disparities in underserved communities through the eradication of societal stigmas and propagation of resources and scientifically based information.
PERIOD. is a global youth-fueled nonprofit that strives to eradicate period poverty and stigma through service, education, and advocacy. PERIOD. works to end period poverty in our lifetime through the distribution of menstrual products, creation of menstrual health curriculum and championing menstrual equity in law and policy.
Our mission through the Red Alert brand is to build awareness and compassion for the women who are suffering from uterine fibroids and related reproductive diseases by presenting thoughtful film production and health advocacy. Through Red Alert: The Fight Against Fibroids, we present the faces of fibroids from all over the world, along with cutting edge and historical research that will spark progressive change for millions of women everywhere. No more suffering in silence.
The Society for Women’s Health Research (SWHR) is a national nonprofit and thought leader dedicated to promoting research on biological sex differences in disease and improving women’s health through science, policy, and education. Founded in 1990 by a group of physicians, medical researchers, and health advocates, SWHR is making women’s health mainstream by addressing unmet needs and research gaps in women’s health. Thanks to SWHR’s efforts, women are now routinely included in most major medical research studies, and more scientists are considering sex as a biological variable in their research.
The mission of The White Dress Project (TWDP) is to raise global awareness about the uterine fibroid (UF) epidemic through education, research, community, and advocacy. We are dedicated to this mission, by advocating for research funding, highlighting reproductive health inequities, educating many on fibroids and their treatment options, and empowering a community who will advocate for their best health choices and no longer suffer in silence with this chronic illness.
The mission of the American Academy of Family Physicians (AAFP) is simple: Strengthen family physicians and the communities they care for. Built on decades of proven representation, leadership, and advocacy, we support our members and the specialty with high standards and dynamic opportunities.
The mission of the American Academy of Physician Associates (AAPA) is to lead the profession and empower our members to advance their careers and enhance patient health.
GLMA is a national organization committed to ensuring health equity for lesbian, gay, bisexual, transgender, and queer (LGBTQ+) communities and equality for LGBTQ+ health professionals in their work and learning environments. To achieve this mission, GLMA utilizes the scientific expertise of its diverse multidisciplinary membership to inform and drive advocacy, education, and research.
NPWH is the professional community for Women's Health Nurse Practitioners and other advanced practice registered nurses who provide women's and gender-related healthcare. We set a standard of excellence by generating, translating, and promoting the latest research and evidence-based clinical guidance, providing high-quality continuing education, and advocating for patients, providers, and the WHNP profession. Our mission includes protecting and promoting a woman and all individuals' rights to make their own choices regarding their health and wellbeing within the context of their lived experience and their personal, religious, cultural, and family beliefs.
References
1. Rose SL. Patient advocacy organizations: institutional conflicts of interest, trust, and trustworthiness. J Law Med Ethics. 2013;41(3):680-687. doi:10.1111/jlme.12078.
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03/2024
